How to submit a complaint to your local Norfolk CCG

 In this post I will explain how to complain to your Norfolk CCG about their decision not to commission specialist services for ME patients. I have included the contact details for all Norfolk CCGs and a copy of the letter of complaint I have sent. I am happy for anyone to use my letter as Read the full article…

Norfolk CCGs reject an offer to provide specialist ME services

Please help me make a stand. As some of you may be aware, Dr Luis Nacul, a well respected ME specialist, will be providing limited care for moderate & severe ME patients in Suffolk. This is great news, thank you Suffolk CCG (Clinical Commissioning Group) for taking ME seriously. BUT Unfortunately all the Norfolk CCGs Read the full article…

40 things I wish I could tell my younger self

One of the main reasons I started writing my blog was to reach out and help others. When I write my posts I pretend I am speaking to my younger self; whether that’s the anxious child fearful of the world around her, or the depressed teenager desperate to fit in and be liked, or the Read the full article…

A Girl Behind Dark Glasses (Book) – A Review From a Fellow ME Sufferer

Images courtesy of Jessica Taylor-Bearman “I was an inventor, a researcher, a model, and I travelled the world through my imagination. At that time, it was my only saving grace. I existed in a place I called Limbo Land, hovering between the conscious and the unconscious. I could hear my family talking to me, see Read the full article…

You can’t help everyone and not everyone wants to be ‘saved’

Foreword: I wrote this piece a few months ago and I have been waiting for the ‘right time’ to post it. But I’m not sure there will ever be a ‘right time’; so I’m going to be brave and post it now. I’m the sort of person who sees the good in everyone. My empathy Read the full article…