A Girl Behind Dark Glasses (Book) – A Review From a Fellow ME Sufferer

Images courtesy of Jessica Taylor-Bearman “I was an inventor, a researcher, a model, and I travelled the world through my imagination. At that time, it was my only saving grace. I existed in a place I called Limbo Land, hovering between the conscious and the unconscious. I could hear my family talking to me, see Read the full article…

You can’t help everyone and not everyone wants to be ‘saved’

Foreword: I wrote this piece a few months ago and I have been waiting for the ‘right time’ to post it. But I’m not sure there will ever be a ‘right time’; so I’m going to be brave and post it now. I’m the sort of person who sees the good in everyone. My empathy Read the full article…

8 Spoonie tips for getting the calories and nutrients we need on our ‘bad’ days

When our energy levels are low we can find it hard, or sometimes impossible, to prepare or cook food. But it is at these times that we need nutritious, healthy, high calorie foods to help our bodies repair and to give us the energy to get through the day.

When the isolation of illness causes the outside world to feel ‘alien’

When you have severe ME/CFS, or any illness that causes you to become housebound, you feel isolated. It’s very easy to feel forgotten. Your life is put on hold but the world goes on outside without you. How can an event that is so catastrophic for you not impact on world around you? How can Read the full article…