Practical Solutions to Everyday Spoonie Problems

Having a chronic illness means everyday tasks can be challenging, exhausting and painful. But there are steps we can take to make life easier, to limit the stress caused and to conserve our energy for more enjoyable activities. Here are some practical solutions to everyday problems. 1. I’m too weak to lift everyday objects Some Read the full article…

When you have to choose between your hair and your health

I have always been blessed with strong, thick and healthy hair, which I’ve kept long for most of my life. My hair has always been the most striking and beautiful part about me. I used to get compliments daily and I used my hair as a form of safety blanket, which I could hide behind Read the full article…

Taking back control of your life and health

When you suffer from a chronic illness it can feel like you have no control. I have always found this to be the most frustrating and challenging part about being ill. A few years ago my deteriorating health spiralled out of control so rapidly, I felt overwhelmed. Each day I felt like my body and Read the full article…

What it feels like when I crash (ME/CFS)

The push/crash part of Myalgic Encephalomyelitis is well known to people with ME/CFS. Exert yourself too hard physically and/or mentally and you ‘crash’ – your normal symptoms flare up, sometimes new and exciting ones show up, and you’re hurting. In scientific terms a crash is called post-exertional malaise (PEM) and unless you’re managing your ME/CFS Read the full article…

Tips on how to manage chronic pain

Updated 2nd May 2018 I have lived with chronic pain for the majority of my adult life. Whether it’s back pain, migraines, IBS, ME/CFS or Fibromyalgia, pain has been an unwelcome companion for years. I have found a few ways of coping with pain and I wanted to share my experiences. By definition, chronic pain Read the full article…