What it feels like when I crash (ME/CFS)

The push/crash part of Myalgic Encephalomyelitis is well known to people with ME/CFS. Exert yourself too hard physically and/or mentally and you ‘crash’ – your normal symptoms flare up, sometimes new and exciting ones show up, and you’re hurting. In scientific terms a crash is called post-exertional malaise (PEM) and unless you’re managing your ME/CFS Read the full article…

Tips on how to manage chronic pain

Updated 2nd May 2018 I have lived with chronic pain for the majority of my adult life. Whether it’s back pain, migraines, IBS, ME/CFS or Fibromyalgia, pain has been an unwelcome companion for years. I have found a few ways of coping with pain and I wanted to share my experiences. By definition, chronic pain Read the full article…

Does the weather affect your symptoms?

My body is like a barometer and many of my symptoms are affected by the weather. Each season brings it’s own challenges. My fatigue is worse during summer. I find even the slightest physical activity exhausting and I get very dizzy when it’s hot. I’m able to do more during the winter but my pain Read the full article…

My Personal Review of Unrest

I have just watched the film Unrest. What an incredibly powerful and moving film. I’m not going to lie, it was very upsetting for me to watch, it’s like she’s telling my story. I have been through almost everything she documents in the film. Although my health is starting to improve, the memories of how Read the full article…