Newspaper article highlighting inequalities of care for ME patients

I’m in the local paper this week (EDP), this time highlighting the lack of services for ME patients and inequalities of care. I’m sure you are all aware how angry I am about Norfolk CCGs decision to reject an offer from internationally respected ME specialist, Dr Luis Nacul, to provide a biomedical consultant led care Read the full article…

11 Strategies to Combat Negative thoughts and Emotions

This is a post I wrote especially for ProHealth’s Inspirational Corner and it first appeared there on the 3rd July 2018. “Self compassion is simply giving the same kindness to ourselves that we would give to others” We often talk about the physical symptoms we have to deal with when living with a chronic illness, Read the full article…

How to submit a complaint to your local Norfolk CCG

 In this post I will explain how to complain to your Norfolk CCG about their decision not to commission specialist services for ME patients. I have included the contact details for all Norfolk CCGs and a copy of the letter of complaint I have sent. I am happy for anyone to use my letter as Read the full article…

Norfolk CCGs reject an offer to provide specialist ME services

Please help me make a stand. As some of you may be aware, Dr Luis Nacul, a well respected ME specialist, will be providing limited care for moderate & severe ME patients in Suffolk. This is great news, thank you Suffolk CCG (Clinical Commissioning Group) for taking ME seriously. BUT Unfortunately all the Norfolk CCGs Read the full article…

40 things I wish I could tell my younger self

One of the main reasons I started writing my blog was to reach out and help others. When I write my posts I pretend I am speaking to my younger self; whether that’s the anxious child fearful of the world around her, or the depressed teenager desperate to fit in and be liked, or the Read the full article…