When the isolation of illness causes the outside world to feel ‘alien’

When you have severe ME/CFS, or any illness that causes you to become housebound, you feel isolated. It’s very easy to feel forgotten. Your life is put on hold but the world goes on outside without you. How can an event that is so catastrophic for you not impact on world around you? How can Read the full article…

MEpedia – Our Future.

What is MEpedia? MEpedia is a project founded by MEAction, powered by the patient community, and built by volunteers including patients, students, and researchers. The team at MEpedia are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. But they need your help. http://me-pedia.org/ Imagine a website where Read the full article…

Why do so many people still refuse to believe Myalgic Encephalomyelitis (ME) exists?

I would like to start by saying a big thank you to everyone who has left kind and encouraging comments, your support means so much to me. The last 48 hours have been exhausting and a real eye opener. I didn’t realise sharing my story about the realities of living with severe ME would stir Read the full article…