Pacing is a simple concept. So why do I find it so hard?

Living with a chronic illness like ME/CFS creates many challenges. Along with the multitude of symptoms, we also have to learn to adapt to the restrictions placed on our lives and to manage our limited energy levels. The term “pacing” crops up repeatedly – “listen to your body and pace yourself”. It’s a technique designed Read the full article…

To be or not to be a mother?: a tough decision for someone living with mental ill-health.

This is a post I wrote especially for ProHealth’s Inspirational Corner and it first appeared there on the 7th August 2018. I grew up in a very traditional family. As a young person, one of my “goals” in life was to become a mother. I was so sure about it – I even had names Read the full article…

How the government’s welfare reforms almost cost me my life

Foreword: I recently read an article about the full extent of the increased attempted suicide rates which coincided with the introduction of the government’s benefit reforms and ESA. The article stated that: “Staggering” new figures show that the proportion of people claiming the main out-of-work disability benefit who have attempted suicide doubled between 2007 and Read the full article…

Trying to rationalise the irrational

Foreword: My first draft of this post was a jumbled mess of incoherent thoughts. It was quite enlightening to read back as it was a true reflection of how my mind reacts when I’m anxious. It is so hard to organise your thoughts into an intelligible, clear and ordered format when you are anxious – Read the full article…

Fear of the unknown – leaving my protective cocoon.

I have a hospital appointment coming up. It’s for a painless, straightforward heart scan (Echocardiogram) as a follow-up to my recent heart problems. Now this would be a simple activity for a healthy, able-bodied person but for someone with a disabling chronic illness like ME/CFS it becomes a huge undertaking. Added to the physical stress Read the full article…