How to protect yourself from COVID-19 (Coronavirus) when you rely on others for care

With everyone being encouraged to practice self-isolation as a precaution against contracting COVID-19 (Coronavirus) – something that many of us living with chronic illness are experts at – how can you protect yourself when you rely on others outside of your home for your care needs? It’s impossible for us to follow the strict instructions Read the full article…

Please join us for ME Awareness Hour

Every Wednesday at 8-9pm UK time on Twitter, is ME Awareness Hour. It’s a weekly online protest to raise awareness of the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). An hour where the ME community and our allies join together to boost awareness. The idea is that if we all concentrate our efforts at the same Read the full article…

What no one tells you about accessing social care in England

The social care sector in England is in crisis. Thousands are left without the vital care they need, while others who are lucky enough to be deemed eligible are forced to navigate a broken system providing insufficient and inconsistent care. In the following post I detail my own personal experiences, while highlighting the problems with Read the full article…

The importance of self-care when you live with chronic illness

When you live with chronic ill-health self-care can look very different to what’s often recommended – going for a walk or socialising with friends may not be possible. But self-care is even more important for us. What happens when you don’t have the energy to give back to yourself? How do you practice self-care when Read the full article…

A Journey Through 2019 – My Top 20 Blog Posts

2019 has been a challenging year, but also one filled with hope. Rather than write a post looking back at the last 12 months, I would like to end 2019 with a round up of some of the most popular posts I have published this year. My blog is like my diary, so it seems Read the full article…