Another birthday, another year lost to ME/CFS

I turned 44 this week and my birthday has thrown up a whole mix of emotions. It’s a brutal reminder that I have lost yet another year to ME/CFS. I live with a severe form of ME/CFS. I’m housebound, virtually bedbound, and my life is greatly restricted due to this debilitating disease. The forced isolation Read the full article…

Challenging insensitive comments and “who has it worse” competitions

“Life is not a competition. Life is about helping and inspiring others so we can each reach our potential.” Does anyone else feel like they have to bite their tongue a lot? Do you hide a lot of what you are feeling because confrontations are exhausting? I seem to spend so much time suppressing my Read the full article…

Thousands of disabled women are being denied access to life-saving smear tests

We all know the importance of having regular smear tests. As women, we have it drummed into us how vital they are, and a recent campaign was launched following a severe decline in the number of women having this potentially life-saving test. It appears a lot of women are avoiding smear tests out of embarrassment. Read the full article…

The Personal Hygiene Challenges I Face Living with ME/CFS

One of the reasons I started my blog was to try to raise awareness about invisible illnesses. My aim is to show the day-to-day realities of living with a chronic illness like ME/CFS, and the obstacles we face. Even the simplest of tasks are exhausting and can take a lot of planning. We have to Read the full article…