10 Spoonie tips on how to survive a heatwave

The prolonged hot and humid weather we have been experiencing over the past few weeks, or is it months now?, has been challenging for everyone, but the discomfort is magnified when you have a chronic illness. If you have limited mobility and are confined to your bed for long periods of time, it can be Read the full article…

Let me introduce myself

My name is Jo Moss, I am 43 and I have struggled with poor health all my life. After years of tests I was finally diagnosed with ME/CFS in 2006 and later with Fibromyalgia in 2013. I am hypersensitive to everything and intolerant to most prescription medication, so it’s been a struggle to find anything Read the full article…

‘Postcode lottery’ claims over treatment for ME

The following article appeared in the Eastern Daily Press (EDP) on the 26th July 2018. Written by Geraldine Scott. “Postcode lottery” claims have been made over treatment for myalgic encephalomyelitis (ME) in Norfolk and Suffolk, as one sufferer said variations in care had left her angry and abandoned. Jo Moss, 43, from Norwich, was diagnosed Read the full article…

‘Missing behind closed curtains for 12 years’ – Woman describes living with ME

The following article appeared in the Eastern Daily Press (EDP) on the 6th May 2018. Written by Geraldine Scott. Living from one darkened room, relying on carers for the most basic of needs. That is the reality of every day life for one Norwich woman who suffers with a condition which is described by some Read the full article…

Inside the isolation caused by ME/CFS hypersensitivity.

I find hypersensitivity one of the hardest ME/CFS symptoms to cope with as it can be so isolating. Hypersensitivity comes in many forms: hypersensitivity to light, touch, noise, smells, vibrations, foods, medication, chemicals, heat, cold and irritants like pollen and dust. All of these things can cause pain, nausea, fatigue, headaches and migraines. The slightest Read the full article…