The ME/CFS community need healthy allies – can you help?

The reason I started my blog was to raise awareness about invisible illnesses like ME/CFS, and to try to reach out to help others who are suffering like myself. ME has had a big detrimental affect on my life so it’s important that I do whatever I can to raise awareness. But as many of Read the full article…

Living with severe ME – a glimpse into my world (video)

I have created a very honest video about the reality of living with severe ME to try to raise awareness. I would really appreciate it if you could watch and share. Thank you. “ME has stolen so much from me but the most frustrating part about this illness is not being believed, and not having Read the full article…

Self compassion: the gift of kindness

Each month a fellow blogger (A Chronic Voice) hosts a ‘Link-up party’. I have wanted to take part for a long time but ill health restricts how much I am able to do. This month I was determined to get involved. Let me explain what a ‘link-up party’ is: It is a monthly get-together for Read the full article…

Another birthday, another year lost to ME/CFS

I turned 44 this week and my birthday has thrown up a whole mix of emotions. It’s a brutal reminder that I have lost yet another year to ME/CFS. I live with a severe form of ME/CFS. I’m housebound, virtually bedbound, and my life is greatly restricted due to this debilitating disease. The forced isolation Read the full article…

Challenging insensitive comments and “who has it worse” competitions

“Life is not a competition. Life is about helping and inspiring others so we can each reach our potential.” Does anyone else feel like they have to bite their tongue a lot? Do you hide a lot of what you are feeling because confrontations are exhausting? I seem to spend so much time suppressing my Read the full article…